• Rusty Raven M
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    8 months ago

    It looks to be a fairly common situation - hopefully the reddit sub is a self-selected group with a higher than normal number of people in that position, but so many people posting there are miserable and feeling trapped. I went on there looking to get a bit more of an idea of what caring will be realistically like (I’m intending to care for my mother in future) and was not really prepared for the sheer volume of people who are being abused and don’t realise it. I mean I love my Mum, but I would not care for her if it would leave me broke and homeless, and if she develops dementia and starts to scream 24/7 or smear her own shit all over the walls she’s going into a home. No one should be in a position where they feel they have no choice but to live like that.

    • AlexisDyslexic@urbanists.social
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      8 months ago

      @RustyRaven yeah we villianize nursing homes but I’ve yet to see a situation where elder care turns out to be an actually a healthy relationship between the adult children and thier parents.
      I want it work, if I had a better relationship with my mother I’d do more if it.

      Also this lenses given more meaning to the ‘old maids’ of previous centuries. We’re they unmarriageable? or did thier parents intend on having a full time caregiver in thier dotage and ‘groom’ them to become caregivers?

      • Rusty Raven M
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        8 months ago

        I’m pretty sure the full time caregiver role was by design, often the youngest daughter. But the way everything worked was different back then and most people got assigned roles in life rather than being able to choose. Being a caretaker back then would have come with a home and board, which was about all most people could hope for at that time. Sometimes we have a similar idea happening now - one child becomes a caretaker and in turn inherits the family home. But too often now I think we have moved towards the idea that you (or more often that someone else) should care for someone out of “love” alone and have forgotten that does not pay the bills.

        I think a lot of people’s negative attitude towards nursing homes is them mis-attributing their own decining abilities to the place they live, in much the same way some people refuse to go to hospital because “people die in hospitals”. Being stuck at home with insufficient support for your needs can be much worse than the institutionalised care of a residential home. Especially in situations where you are expecting other people to juggle full time work with a caring role being in a nursing home can be a much better situation.

        There are definitely some people who have good experiences with caring for parents (which will hopefully be my experience!) but that can only happen if it is a free choice, not one forced on someone through guilt or coersion, and not when it leaves the carer with no resources to look after themselves. The “old maids” in the past would have generally gone on to be cared for by someone else in the family, or perhaps entered the church as a nun where they would have been cared for.

        • AlexisDyslexic@urbanists.social
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          8 months ago

          @RustyRaven yeah i’m the youngest daughter but I don’t get along with my mother and never have and now I live 3,000 miles away with my own life.

          My cousin was the youngest ‘daughter’ in airquote because she was adopted for this task in mind. Also there was no family home. They were renting, in Tahoe which is super expensive.

          My neighbor did this and she did get the family home but i’m pretty sure her brothers still have say in the matter even tho they didn’t do any work.

          • Rusty Raven M
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            8 months ago

            It seems to be common for people to leave the family home to all the children jointly and just give the carer the right to live there. If that is the case it can often lead to a situation where the other siblings resent paying a share of the costs of a home they can’t get any benefit from and maintenance is neglected. Even if it is inherited in full it can leave the carer unable to fully support themselves if they did not get a chance to establish themselves and save money independently first, again leaving them dependent on the good will of other family members to help them.

            Putting people into residential care or paying for home care is hugely expensive, it’s sad that so many people who are carers for family are not valued at even a fraction of what a paid carer would receive and are instead pushed into poverty. We are lucky in Australia that we at least have a carer’s pension available to help (and unemployment benefits if you stop caring), even if it is less than minimum wage. It sounds like some of the people in USA have literally nothing and are completely dependent on the person they are caring for. No matter how horrible a position they are in they can’t stop without becoming homeless.

            • AlexisDyslexic@urbanists.social
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              8 months ago

              @RustyRaven we do have Society Security but this only works if you have a paying job that tracks your hours. And I’ve heard of programs attempting to address all these issues. In WA State there’s a ‘home health’ program where these family members can take a certification course and get paid minimum wage for doing the work they are already doing for free. And they get basic training on first aid & elder care.
              The US is really 50+ different countries in some ways ( as the name itself implies).

              • Rusty Raven M
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                8 months ago

                I used to think USA states were similar to Australia’s, but once I learned more I realised it’s a lot closer to Europe and the states are a lot more like separate countries. Different towns and regions within the states also seem to be a lot more distinct and seem to be closer to what our states are.

                Minimum wage for carers is a good thing, as is the training. The carer’s pension here is a bit less than minimum wage (although once you add in a few bonuses and extra assistance if you are renting it gets pretty close). I haven’t seen any training even available for elder care (outside of courses for people seeking actual employment).

          • Rusty Raven M
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            8 months ago

            Interesting. Is that to do the actual caretaking, or to provide the home & financial support and someone else provide the actual care?